Arthrogryposis is a rare disorder characterized by multiple joint contractures, which can include muscle weakness and fibrosis. Antoinette has lived with this since birth, yet she manages to pursue her interests, such as controlling a computer with her head and reading books. Of course, she has to rely on others for some other needs.
Her 50-year-old mother currently carries her from floor-to-floor in their home because it is a rental and they cannot make modifications. Antoinette initially requested a better way to get upstairs to her bedroom, but decided to change her request to address what she sees as a bigger problem.
While at home, Antoinette lies on her side and eats off a plate on the bed. When dining in public, someone has to feed her, which would be embarrassing for any 20-year-old.Despite these obstacles, Antoinette remains strong and hopes V-LINC will be able to help her. She would like an engineer to design a way for her to feed herself at the family dinner table, a place of conversation and sharing.
If V-LINC’s Project Review and Acceptance Committee (PRAC) committee approves this request, we will then begin the search for a volunteer who is ready to take on a tough project. This will not be an easy challenge!
We are always looking for creative volunteers and other inventive minds who want to help make life better for others. Please contact V-LINC or fill out a volunteer application if you or someone you know is the right person for this job.