Hannah is an intelligent 12-year-old child with severe osteogenesis imperfecta (OI) type III, a condition that causes very fragile bones. She is very small and is not expected to grow significantly. Her mother, Valerie, tells V-LINC that Hannah has had more than 110 bone fractures in her life already, and both arms and her right leg are currently in casts. She cannot even walk without causing a fracture.
Valerie wanted a way for Hannah to transfer in and out of bed independently. Hannah can scoot across the floor and crawl onto surfaces up to 10 inches from the floor, so Valerie suggested a low bed with the possibility of a recline for comfort. Several members of our Client Service Team (CST) contacted Hannah's mom to learn more about Hannah and report their findings back to the rest of the committee. The CST had a difficult time deciding whether or not V-LINC's volunteers might provide a solution without harming Hannah. Difficult decisions such as this are ones the CST is faced with all the time. Our hearts are grabbed.
V-LINC volunteers and Hannah's mom put their heads together and found a way to make Hannah's wish for a small, Hannah-size couch was granted, along with another project to create a ramp so Hannah can crawl onto her sofa by herself. Hannah has heart and does not let her fragility keep her from being a teenager and full of life.
Hannah is able to sit in her own Hannah-size sofa now. She can crawl up a soft ramp to sit and then she tilt the sofa to rest comfortably. A wheel chair is not a comfortabe place to be all day long, so this is a very welcome addition in her life.