Providing Independence Through Technology
Tzvi's has to have an enema treatment nightly due to his spina bifida. While this experience would be uncomfortable for anyone, it is made worse for this 4-year-old because he has to remain seated for at least an hour on a seat that is too large for him. Commercial potties are too small for him, so Tzvi would like a portable toilet seat with footrests.
Tzvi's parents also bring him a portable DVD player to use each day, but the bathroom is quite narrow to allow a small stand to be placed across from him. If it is possible to build a small platform that can flip down from the wall, they would be grateful.
Disability: Spina bifida
Location: Baltimore, MD 21209
Age: 4-year-old male
Zoila is a young girl with Rett Syndrome; at 6 years old, she can neither walk nor talk. Her mother researched that about 85% of people with Rett Syndrome will eventually learn to walk, and she would love to ensure that Zoila becomes one of them. She is looking for a stander device where her muscle groups can be more dynamically involved or challenged, perhaps with a movement that patterns a walking gait.
Location: Quantico, MD 21856
Terri suffers from dystonia and can not write or it will cause her extreme pain. She is looking for a modified tubular splint that would keep her wrist flat and immobile while still being able to write. The splint would need to hold a standard pen as well as a "smart pen."
Location: Forest Hill
James is a young man with Duchenne Muscular Distrophy. His condition makes it difficult for him to sit at the table with his family or be very mobile. His family is looking for a way for him to join them for meals and have more support for his head and arms. Any chair or modification would have to be mobile to give him activity and make it easier to move him. He does not have much strenght in his limbs so assistance would be needed.
Location: Brunswick, MD
This scooter was modified by a volunteer so that a six-year-old boy who cannot walk for long distances could use it. Now, he no longer has to ride in a stroller when the family goes out on the weekends.
[The scooter] has given him such a sense of interdependence and pride. The comments from the public as he goes whizzing by are ‘wow that is so cool, where can I find one?’ This makes him feel like a million bucks! ~Mom
Volunteers built Iraq War veteran Sgt. Kessler specialized attachments for his prosthetics so he could return to rock climbing.
John’s contorted leg doesn’t allow him to fit in commercially available wheelchairs. He remained in his bed for 15 years until a volunteer heard his story and built him a wheelchair he could use.
I’m with the living. ~ John after joining his housemates in the living room thanks to his new wheelchair